Monthly Archives: October 2011

Is it Pain? or Do I Need An Attitude Adjustment?

Yes it’s time for one of my personal experience rants…


mis·er·a·ble
ˈmiz(ə)rəb(ə)l/
adjective
  1. (of a person) wretchedly unhappy or uncomfortable.
    “their happiness made Anne feel even more miserable”
     
    2. pitiably small or inadequate.
    “all they pay me is a miserable $10,000 a year”

 

Am I the only one who is known as the cranky one, the angry one, the mean one or the snippy one?  Same thing when I was working.  No one understands that I am never totally pain free.  Every little movement that others take for granted is a chore for me.   With that said I snapped this past week on the family.  Any cleaning or house work I get done is by sheer miracle and struggle so for someone to come behind me after I have mopped with dripping hands (after washing hands in sink) then leave foot prints or spill something without completely cleaning it drive me crazy.  Why?  I’ll tell you why, after I have have mopped I’m down for days following and let’s not talk about the pain during.   Then for someone to come behind me as if it’s no big deal infuriates me. Most people can do something as simple as cleaning but for someone like me it’s painful and takes me down.  Between the fatigue, limbs feeling like weights and pain in all of the usual tender points I feel tutored at times.

Are tender points large areas of pain?

No. The actual size of the point of most tenderness is usually very small, about the size of a penny. These areas are much more sensitive than other nearby areas. In fact, pressure on one of the tender points with a finger will cause pain that makes the person flinch or pull back. Tender points are scattered over the neck, back, chest, elbows, hips, buttocks, and knees…. more

Speaking about tender points my 18 year old son and my 45 year old partner really don’t get how painful their touch can be.   They are both heavy handed and mean no harm but once the pain hits I am demanding that they stop touching me.  Sounds bitchy?  I’m sure, however at that moment I just want the pain to stop.  I am constantly apologizing for sniping at those I love.

                                                          Or Sometimes I’m Just Plain Ole Miserable

My mood is determined by the amount of pain I am experiencing at that moment.  That’s the depressing part, for me I feel as though my body has turned on me and killed the carefree and light side of me.  This time of the year (Fall) is the beginning of like six months of daily misery.  As the weather begins to change into the cold months my body is at it’s worst.  My partner and I are constantly at odds over the window, what she deems comfortable I myself am suffering.  The only other person in my life who can relate to my pain and discomfort is my mother who her self is 89 and suffers from Rheumatoid Arthritis.  Lastly those who love us don’t understand that they add to our despair when they don’t sympathize or at least try to relate to my struggle.

mis·ery

noun \ˈmi-zə-rē, ˈmiz-rē\

plural mis·er·ies

Definition of MISERY

1: a state of suffering and want that is the result of poverty or affliction
2: a circumstance, thing, or place that causes suffering or discomfort
3: a state of great unhappiness and emotional distress

Examples of MISERY

  1. The war brought misery to thousands of refugees.
  2. They were living in overcrowded slums in conditions of great misery.
  3. a source of human misery
  4. the joy and misery of life
  5. The last years of her life were a misery.
  6. Stop being such a misery.
                         So I’m gonna end with “If you were miserable all the time how happy would you be?”

Why Do You Have Fibromyalgia? found this article on Fibromyalgia-Symptoms.org

Why Do You Have Fibromyalgia?

Are Your Children Doomed?  The Genetic Factor.

Is there a fibromyalgia gene that predetermined your condition even before you were born?  Read on….

Is fibromyalgia a genetic condition passed along from parents to children in a never ending cycle of pain, fatigue and sore muscles?  Studies have uncovered that fibromyalgia sufferers tend to have parents, siblings and children suffering from the condition more often than non-fibromyalgia sufferers.  However, other studies have shown that stress, especially post-traumatic stress, plays a significant role in the onset of fibromyalgia and these family members may suffer from the condition due to their experiences with the same trauma that brought about your fibromyalgia pain.  So, is this condition genetic or not?

Are your children doomed to inherit your fibromyalgia?  Read on to find out more…..

Injuries and Fibromyalgia

Are your injuries from a car accident or even a sloppy gym workout the cause of your fibromyalgia pain?  Read on…

More and more studies are showing that people, who have been injured in an accident, or even from pulling a muscle during a lazy workout session, are more likely to suffer from the pain of fibromyalgia.  In fact, people who have suffered a neck injury are 13 times more likely to develop fibromyalgia than the rest of the population.  However, did you realize that resting your injured muscles is one of the worst things you can do for your fibro pain and can lead to permanent, chronic muscle pain?

Find out why you need to stay in motion and keep your muscles toned and in shape.  Click here to find out more….

Fibromyalgia Causes

What causes fibromyalgia?  Read on…

No one knows the exact reason for the onset of fibromyalgia.  There appear to be many factors involved in the development of this condition including genetic factors, severe stress including post-traumatic stress, injuries from accidents or severe trauma, magnesium deficiency, and sleep interruption.  In fact, one study shows that when the sleep of non-fibromyalgia suffers was continuously interrupted over a specific time period, the patients all began developing symptoms of fibromyalgia.

However, despite the lack of consensus on the cause for developing fibromyalgia, there is one magic cure that seems to provide relief to all fibromyalgia patients.  Click here to find out how to live pain free….

Copyright © 2009 Fibromyalgia-Symptoms.org, 6 Welches Grove, St Thomas, Barbados, 22025. All rights reserved. If you wish to unsubscribe or update your profile, click here.

Breast Cancer Awareness Month.. I need to be examined.

Pink-October-Press-Pack-360x230

As you know I am a 45 year woman who constantly writes about my life dealing with Fibromyalgia however I am also a woman who is very top heavy meaning my breast size is 40DD and concerned about breast cancer. I haven’t had a mammogram in over 4 years and as I write this I have decided to setup an appointment at Methodist Hospital in Park Slope Brooklyn.


In the meantime I have been examining myself for the past 4 years. I have included guides to self examinations for those of you who don’t know how. I must say that it can be a little confusing as to what is your natural breast masses vs a lump to be concerned with.

I am an Adoptee which adds another level of concern, I was born in New Jersey and now live in New York and neither state allows an adoptee to have access to their family medical history. I wouldn’t know if Cancer, Heart Disease or anything else runs in my blood line. Another reason for me to stay vigilant.

If I discovered I have breast cancer I think I would be just like Wanda Sykes but without the money. I would hope my insurance would cover the operation, because if diagnosed with cancer in one breast I would want to remove and replace both. But what about those woman who don’t have insurance? Would they have the same opportunity?
I’m going to do some research on that topic and get back to you.

I must say that the breast is a tricky organ if it in deed is considered an organ. My breast has always had something of dried that I can squeeze from my nipple. Back 4 years ago during my mammogram I brought this to the attention of the Doctor and Technician and was told that’s some what normal. But once again you never know.

Here’s a video I found to help with examining yourself correctly, but once again don’t be like me and think this is enough. I’m finding that it’s not that I just don’t have the time or it’s not important to me. I beginning to learn I am afraid of results, so that’s why I am going to practice what I preach and just do it.

fibromyalgia and sex

download (5)

I found this article on WebMD.com

I know this sounds a little crazy but I am space relieved to find that I am not the only one who has no sex life. This is another symptom of fibromyalgia intimacy is very hard at a 18-year-old son and a partner of 10 years that I cannot hug because I am sore and tender to the touch. the slightest touch or pressure hurts extremely, no one understands I believe other than someone else with the same affliction. That’s where I got my idea to create a women’s only site Sirens and Sappho that caters to all women regardless of race status or sexuality. In the decline of my sexual drive a turn to the Internet for stimulation to help and found that it only made me feel cheap and dirty. Everything caters to the satisfaction of named in the using of when and which has never been a turn on for me so hopefully there will be more of us out there where we can discuss and grow our own community to help each other because whether we realize it or not as the article shows below a good sex life is very important physically mentally and emotionally and I would say sometimes spiritually.

fibromyalgia and sex

If you have fibromyalgia, you may also be having problems with your sex life or relationships. You could be experiencing loss of libido or having difficulty with sexual performance. It’s also possible your libido is healthy, but the deep muscle pain and stiffness of fibromyalgia may keep you from enjoying sex the way you used to.

It’s not unusual for people with any chronic illness to complain about having problems with their sex life. But a healthy sex life is important for many reasons. Not only does sex strengthen an intimate relationship, but sexual intercourse boosts endorphins. Those are the body’s natural opioids that help decrease pain and increase well-being. Talking openly with your doctor and following a few practical tips can help you resolve problems associated with fibromyalgia, pain, and sex. Then you can begin to enjoy this aspect of your life again.

more from WebMD

What Causes Loss of Libido With Fibromyalgia?

Some of the medications, such as the SSRI antidepressants like Paxil and Zoloft, used in the treatment of fibromyalgia may cause reduced sex drive. If you take an antidepressant and have problems with libido, talk to your doctor. A simple change of medication or a reduction in dose may improve your sex drive and allow you to enjoy your relationships more.

Also, for some patients, having to deal with the uncomfortable symptoms of fibromyalgia, including the ongoing pain, fatigue, anxiety, and stiffness, is difficult enough without thinking of being physically active with sexual activity. Learning to self-manage these symptoms with medications, exercise, and lifestyle habits may help to boost your sex life.

How Can I Have Sex if I Hurt all Over From Fibromyalgia?

Some fibromyalgia patients give up romantic aspirations for fear of further injury and pain. Yet being intimate with your partner is still possible. With fibromyalgia pain and tender points, you need to work with your partner to find the most comfortable position during sexual intercourse. For instance, if you have fibromyalgia with low back pain, you may find that having your partner on top or lying on his or her side is most comfortable for you. Or, if you’re a woman who has fibromyalgia and hip pain, you might use a pillow between your knees to stabilize your body during sexual intercourse.

Just because you’ve “always had sex this way,” does not mean that’s the only way. You need to be patient, take it slowly, and find the best sexual positions that allow you to be intimate without causing further pain. Keep in mind, there is no right or wrong way to be intimate with your partner.

Can Soaking in a Warm Bath Before Sex Help my Fibromyalgia Pain?

Moist heat, including soaking in a warm bath, can help ease fibromyalgia pain and may allow you to enjoy sexual intercourse — or any exercise — without added pain. Heat increases blood flow to the site and decreases stiffness, important because, along with pain, stiffness is a key symptom of fibromyalgia. Regular moist heat applications or warm baths may help temporarily to alleviate muscle pain or tender point pain, reduce muscle spasms, and decrease inflammation.

When using moist heat, make sure it is not too warm or you can burn your skin. You might soak in a warm bath for at least 15 minutes before sexual intercourse or other physical activity to get the full benefit. You may also soak in a warm bath after sexual intercourse or other physical activity. Other popular types of moist heat include a warm shower (sit on a chair, if needed), warm whirlpool or hot tub, heated swimming pool, and a moist heating pad.

A New Life for this Fibromyalgia Victim

I know it’s been a while since we last spoke but I’ve been very busy. Earlier this year I was laid off which was a blessing in disguise because my body could no longer keep up with the demands of my job. So I decided to start my own home based businesses http://busyjoujoubees.com and http://sirensandsappho.com. I’m going to warn you before hand Sirens and Sappho site is for mature audiences only.

The last nine months I have built sites creating a buzz and updating the information on all sites, as well as promoting my business. Even though I was diagnosed with fibromyalgia about 8-9 years ago I am learning something new everyday. My latest discovery is working around my flare-up, in the cold months is when my body hurts the most, before my period I am it with all symptoms from the mental to the physical to the emotional effects of fibromyalgia.

This is something I have to work on to survive, because other than having my own businesses I wouldn’t be able to make a living. Social Security disability is very hard for fibromyalgia sufferers to get and there are no programs that I have found that take this disease or should I say syndrome seriously. As I’m writing this post every part of my lower body is paining me but what I have realized is I’m always going to be a pain the difference is to what degree. So on those manageable days I try to get as much done as possible. I lose a week out of each month during my PMS stage. now that I’m on my own schedule I know not to plan anything during that time. As I learn more ways around surviving with this syndrome I will keep everyone apprised.

Stay positive.